Wednesday, June 28, 2017

Round 3 Update

I received my third chemo infusion this morning. The process is starting to feel routine and I now know what to expect. First, I check in and sit down in the waiting area. I'm usually the youngest person there by a decade or two and I'm suspicious that some of the others give me sympathy glances. Maybe they are thinking, "At least I'm not that  young!" and if that is the case I am happy to give that to them. They have bowls full of Wether's Originals in the waiting areas if that gives any indication of the clientele's average age . I eat one or two and they are delicious.

I am then taken back to get my blood drawn. They insert a needle into my port, flush the port with saline, and take two blood samples. I can usually taste the saline. The saline is not delicious. Blood tests come back after 15 minutes or so.  I then meet with my oncologists or the nurse practitioner. Today it was the nurse practitioner. For the sake of everyone I have compiled of list of my side effects based on the day of the round (Day 1 being infusion day). This is just what I have experienced in rounds 1 and 2. Things may change during this and future rounds. WARNING: I have colon cancer and poop has become a central part of my existence. If you don't like to acknowledge the existence of poop do not read on.

Day 1: Infusion day: usually take a nap after getting home from infusion. Throat has off feeling and drinking really cold things makes me feel like I have rocks in my throat. I have mild nausea and loss of appetite. I take an anti-nausea pill or two and can still eat.

Day 2: This day so far has been surprisingly normal except for one item. This is Hiccup Day. I get random hiccups throughout the day. I was told only men ever get this side affect (but not all men). I may have less of an appetite but nothing horrible. I also might take a stool softener or two pre-empt some future issue.

Day 3: No more hiccups. Loss of appetite, nausea, and fatigue really ramp up on this day. I try to keep on top of it with meds. During Round 1, I couldn't finish a full day of work. I made it on Round 2 but went to sleep at 7 pm. More stool softener. I usually have some output but it's not much and constipation is the main side affect of the anti-nausea meds.

Day 4 and 5: Basically the same as Day 3. I limit the stool softeners because I know what it is coming in a few days.

Day 6: About the same as Day 3 to 6 but starting to feel closer to normal.

Somewhere in the Day 7 to Day 9 range: Diarrhea attack. Seems to only last about half a day and Immodium helps. The chemo really takes the digestive system on a roller coaster ride. Other than that unpleasantness these days aren't bad and I feel normal. Because I have an ostomy, the diarrhea can irritate the skin around my stoma if I don't put my equipment on correctly.

Day 7 to Day 14: These days are relatively normal besides the mentioned attack. Somewhere in here I seem to get a day or two of depression. I have experience with depression in my past and am on meds but it's possible I'd up my the dosage if things got worse. I don't usually get it as much in the summer so I tend to think it could be chemo related. Or maybe I'm just depressed that I'm constantly thinking about poop. I do get my appetite back on these days. I try to eat healthy and to keep the digestive track happy. I have had days where I felt like I over ate a bit and was worried I might gain weight but so far my weight has been steady since the start of treatment. I also try to get 4 or 5 runs of a few miles in. I walk at least 10000 steps almost all days during the cycle

Finally, my blood tests were all very healthy and normal today. I was told my kidneys had excellent function and my liver was good. White blood cell counts were good. The kids hung out with me today at the cancer center. I don't know how Aden does that with his eyes.




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